Stories of survival

These stories are written by families with a child who was born with and survived Congenital Diaphragmatic Hernia (CDH). This is where our families can share their journey and celebrate the lives of CDH warriors who are surviving and thriving.


It is important to note, outcomes for children with CDH are varied and depend on factors such as the severity of the condition. Most babies who survive CDH will meet their developmental milestones like other children but will require regular check-ups with their doctors.


Our family stories are heartfelt and inspiring but may be emotionally triggering. For support options, please visit How we can help


Please respect the privacy of the authors by not sharing the content without their permission. Some stories are password protected: Please email us to request the CDH stories password.

Share your story


Your experience may help other families navigate their own CDH journey. You’re invited to email us your story.

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