CDH stories

These stories have been shared by families with a child diagnosed with Congenital Diaphragmatic Hernia (CDH) in the hopes of helping other families navigate their own journey.


Our family stories are heartfelt and inspiring but may be emotionally triggering. For support options, please visit How we can help 


Some stories are password protected: Please email us to request the CDH stories password.

Share your story


Your experience may help other families navigate the uncertainty of a CDH diagnosis. You’re invited to email us your story.