Raise awareness

Many families who find themselves navigating the Congenital Diaphragmatic Hernia (CDH) journey have never heard of this life-threatening condition before receiving a diagnosis for their baby, child, or loved one. 


We aim to change this, with the goal being that the more people are aware of this condition, the more can be done to help support families facing CDH and the more funds we can raise to help fund further medical research.


Download our CDH Awareness and Fundraising Toolkit here.

Read our CDH awareness stories

Mikayla’s daughter, Marley, was born in 2010 with left-side CDH at 36 weeks. Read Mikayla’s story and be inspired to raise CDH awareness in your community. Read more

Emiko and Jeremy, parents of CDH warrior Ari, took to Melbourne’s streets twice to complete two virtual half marathons to raise awareness and funds for the CDH community. Read more

Lydia, mum of CDH angel Freddie, didn’t let the QLD lockdown stop her from honouring her son’s brave 4.5 month battle with CDH by taking part in the virtual Gold Coast marathon. Read more

How you can help build awareness


  • Follow us online: Like and share our posts
    We are on Facebook, YouTubeLinkedIn, Twitter and Instagram please follow us and share our posts to help build awareness amongst your connections. We often share our news, research and annual awareness events through these channels. The more people who see our posts and learn about CDH, the more we can help families experiencing this condition. 


  • Help us honour your CDH child
    We acknowledge special dates for CDH families on our Facebook page. We celebrate our CDH survivor birthdays and we remember and pay tribute to our CDH angels on their date of birth and angelversary. If you would like us to honour your child, please send an email.


  • Share your story through our website or the media
    If you feel comfortable sharing your story through our channels, or through a potential media story, please contact us via email. We have a section on our website where families have shared their own stories in the hopes of supporting other families who are going through a similar experience. If you have a story you think would be beneficial to gain media attention, this will also allow us to spread awareness of CDH even further. 


  • Subscribe to our e-newsletter
    We share information about our events, news, and research through our e-newsletter. You can subscribe so this information is delivered straight to your inbox, and from there, you can forward our news to your family and friends. Or, ask them to sign up too! 


  • Fundraise for CDH Australia
    Fundraising helps us provide support services to CDH families while educating the community about this rare birth condition. Learn more about fundraising.

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